Meeting 23rd November

A very informative session was provided by Kathryn Carver, Lead Heart Function Nurse at CUH, followed by lots of useful questions (and answers!). Kathryn provided advice about living with reduced heart function, what different medications do to help, and told us how cardiac rehabilitation is a great way to increase activity and improve symptoms.

Following on from that, we’re delighted that we will be joined by Alan Darby from the Cardiac Rehabilitation service at our next meeting in January. If you’d like to find about more about staying active while living with a cardiac device, please come along!


Next meeting 23 November

Our next meeting is scheduled for 2pm on 23rd November, to be held in the small hall at Arbury Community Centre.

We will be joined by Addenbrooke’s lead heart function nurse, Kathryn Carver, who will provide a talk about living with heart failure. Kathryn is a fantastic and very experienced nurse who will be able to answer many of your questions so please come and join us for an interesting and useful session.

Upcoming meeting

Our next meeting is planned for 14th September at 2pm at Arbury Community Centre and we’re looking forward to seeing you there.

If you have any questions or issues with your ICD that you’d like to know more about, please drop us an email at so we can come prepared!

Buddies are also available if you’d like to talk someone about your ICD in between the group meetings. If you’d find this helpful please email and we’ll put you in touch with one of our buddies.


We had a very interesting session at our last meeting, with a presentation from the East of England Innovation Hub. They are collecting patient feedback regarding what types of currently available innovations would make the biggest impact on improving patient’s lives and addressing health inequalities for those with cardiovascular disease. We wait to see what comes out of it! You can find out more about it on their website.

The next meeting will be held on 14th September, as usual at 2pm at Arbury Community Centre. Please mark this in your calendar as we love to see so many of you attending!

Next meeting 6th July

We will be joined by a team from the national cardiovascular prevention programme, who would like to talk to patients/people about their views and experiences on using innovation to manage and improve their cardiac conditions and develop a better quality of life. This is our chance to ensure people with heart rhythm problems are included in this programme!

If time allows, our resident cardiac physiologist Kate will also talk about her research into ICD support groups.

As usual, there will be refreshments and time to socialise and share experiences with each other.

Buddy update

Our first training and guidance session for new buddies was successfully delivered on 21st May. We’re delighted to welcome new buddies to the group!

Our buddies can offer a supportive ear if you’re struggling with adapting to your new device or have questions about living with an ICD or pacemaker. If you’d like to speak to a buddy, please EMAIL US.

Next meeting 25th May

Our next meeting will be held at 2pm on Wednesday 25th May in the large hall in Arbury Community Centre.

We will be joined by a technical representative from Boston Scientific. They will be bringing a simulator to demonstrate routine ICD check-ups and will be happy to answer questions about what happens when you come to clinic.

Public Choice Award at Addenbrooke’s

The first staff awards held by Cambridge University Hospitals NHS Foundation Trust have been launched. Patients, family and friends are able to nominate individuals or teams at Cambridge University Hospitals (CUH) who have made a difference to their lives and embody the trust’s values of “safe, kind, excellent”.

Titled ‘Kindness, compassion and care – The Public Choice Award’, the category is open to nominations now via a simple form below.

Those nominating can also send a personal message of thanks to staff – and all of these will be passed on to the nominees.

23rd March 2022

It’s looking promising to return to Arbury Community Centre for our meeting on 23 March, which will be held at 2pm. We are looking forward to seeing you all in person.

The topic of the meeting will be battery monitoring and device replacement. There will also be time to meet and talk with other members and refreshments will be provided.

Next meeting

Our next meeting is scheduled for Wednesday 23rd March at 2pm so please add the date to your diaries.

Further information will follow regarding the speaker and/or discussion topic.

We’re hoping this meeting will be held back at Arbury Community Centre but will confirm this nearer the time.